This is very out of the ordinary for
me. I used to write a blog years ago but it was more about family
life updates to keep faraway loved ones in touch. Once I started experiencing health issues during my pregnancy with
Brandon, and his health issues following that, I found it hard to
keep going so I quit. Writing a blog about my health has been brought
up a few times but I quickly shot the idea down. It's just not for
me. Although with my recent diagnosis with Lyme disease and the many
questions and concerns coming from those around us we thought this might be
a better way of sharing with everyone the main updates. I know especially our family and friends in other provinces will appreciate it. I have the
desire to explain everything to you all in person or on the phone but I just do not
have the energy to do so right now. Often when I have
conversations I walk away feeling like I left you more
confused than anything else and then of course I remember a bunch
more things I forgot to say. I am working on the first update and hope to share it soon, it's taking
me a while to get it all sorted out as I would like to answer most of
the questions we've been asked. I just wanted to let you all know that you
can check here for updates in the future.
We do have a couple concerns with me
writing a blog, one being it will cut into my rest time. Writing
takes a lot of effort for me. I used to use writing as a relaxing
outlet when I could concentrate with little effort but this is no
longer the case. It still helps me sort things out in my mind so I do try write things down but it
does take effort. So to avoid it being added stress for me I will not
make any promises for how often I will update or how much sense they
will make.;)
The other concern is that all along I
have been fairly private about my health struggles because this has
been a very difficult journey for me. Many of my
symptoms came on suddenly and are hard for me to talk about,
especially after we tested for so many things and tried so many
medications, treatments, and therapies to no avail. One of my doctors once said “Something is not working well and causing a lot of problems, but I
do not know what it is or how to find it”. It was discouraging and I
found it hard to open up and talk about it so I only shared what I had to. For the last year and a half I kept most of it to myself and those close to me as much as I could, especially a lot of the symptoms because I had a lot of fear of being seen as a hypochondriac. So again, this is very
out of the ordinary for me and something I never thought I would do.
For this reason I've been wondering why it ended up being something like
Lyme disease, where even when after the friendly lady sitting next to me who is
also receiving IV therapy asks what I'm there for, her eyes widen and she gasps, “I know
someone's daughter who has that! Her story is awful!...”
as she waits eagerly and curiously for me to begin sharing mine... It seems to be something many people have an interest in, especially because more are realizing Canada is so far behind in testing and treatment that Canadians have to seek proper testing and most treatments in the US. I am thankful that as more awareness is brought to this, more people are getting interested, asking questions, and informing themselves. So going
against all that I said I'd never do, I am going to try step out of my comfort zone and share more of my story.
